Sunday, August 31, 2014

I can not believe how hot it is today.  I hate sweating. I am in some pain today. Getting stressed did not help. that is when the pain started. I wish people could get along and stop this crazy petty stuff. My head is killing me also.

Saturday, August 30, 2014

Last night I took too many sleeping pills. I did sleep though. Right now I'm having pain like tons of ants singing my left foot. No matter how I move it. It still hurts. Ouch!

I took my shower. It takes a while to sike myself up to get in the water. The water coming down like acid rain and the water is never the right temp. I am just glad that is over. My MS is actually doing good today. No real complaint, just the regular aches and pains. My jawbone hurts. but that is partly my fault. I cut the skin of the bone.

Tonight my skin is crawling. When Emily touched me I almost came unglued. It felt like her touch burned my skin. This happens quite a lot to me. I'm lucky that my husband understands.

Friday, August 29, 2014

I hate asking the kids to bring me stuff but the fatigue is worse today because I didn't get any sleep. It is hard to do things today. I'm so grateful for Mikayla. She doesn't even realize how bad I feel physically. I just want to sleep.

There is serious pain in my right thigh. And pins and needless in my foot. There are times I just don't want to go on.

Thursday, August 28, 2014

Today was not to bad. There is the "junk" in my throat. The more I try to swallow the more seems to come back. Oh well. My nerve endings seem to be on high alert. This is not a bad day though.

I'm so glad that my MS friends can read my blog and I can read yours. It has helped me a great deal to know that I'm not crazy or imagining things.

It hurts to lay down, it hurts to sit down and it hurts my legs to stand. I sure love MS

Wednesday, August 27, 2014

This morning I knew I was in trouble. As soon as Rob went to hug me goodbye, my skin started hurting. That is one of the bad things about this disease. I have been having blurry vision  for the last 16 hours in my left eye. I am hoping that it goes away.

Tuesday, August 26, 2014

I started the day feeling somewhat tired. But that is not unusual for me. for the last two hours I feel like I am  sandwiched in between two magents and i can not move a muscle. Its hard to explain the feelling of being so tired that going to the bathroom excerts you.
Outside of lying down and letting it run its course, I haven’t found too many useful ways to deal with that fatigue. I’m typically one to push through illness; I try to work out almost every day, even when I have a cold or a mild digestive problem. And to be sure, sometimes getting out and getting moving combats my MS fatigue. But not always.

My partner not only has to imagine what it’s like each day for me to deal with pins and needles, numbness, shooting pain, aching, dizziness, nausea, and overwhelming fatigue, but he also has to live with the same uncertainty of waking up each day and not knowing if we can do the things that we had planned. he is the only one that truly understands how I can look so good on the outside and feel so miserable on the inside. He gets it when I have to cancel plans because I did too much the day before.

Thanks to MS, I’ve learned to truly take one day at a time. I wake up grateful for each day that I can walk, but I also wake up grateful that I have someone in my life that will stand by me no matter what. It would do us all good if we remembered to let our significant others know how much we appreciate all that they have done for us by sharing in living with the uncertainty of life with MS.


Being diagnosed with a label that carries so many connotations means you are often met with “that look”.  You know the look, the one that screams pity.  Well my dogs don’t feel sorry for me, they don’t get angry with me when I have mood swings or forget things.   They don’t judge me if I lie on the sofa all day, they just burrow under the blanket and join me.  If I’m sad and a tear falls from my cheek, one of them will rest their head on my shoulder or their paw on my lap, no words are spoken but comfort surrounds me.  It doesn’t matter what I can or cannot do, my dogs are always there, just happy to be with me.  I believe that kind of love is known as unconditional.

Monday, August 25, 2014

I start back to college today. I'm so nervous that my shoulders are tense and hurting. I didn't sleep last night, so I know that means trouble for me. This darn pain above my left ear hurts. Going on 2 months. I don't want lesions!

My daughter Mikayla is nervous going into high school. I didn't want her to see how nervous I am. I feel like throwing up. Not a cool mom now!

My shoulder is killing me. I don't know if it is the MS or the diabetes or just getting old. lol. I just hope this day is over soon. I have had a great day so far except for the throbbing pain above my left ear. I feel like i can feel the blood rushing through that spot. My left eye is twitching but I have tried to keep my glasses on hoping that it helps.

Saturday, August 23, 2014

I couldn't sleep last night. My head was hurting. No not a headache. I had cold chill bumps that hurt when touched. Today I'm taking Emily shopping and it's burning up in these stores. People are way to close to me. I feel like I can't breathe.

Thursday, August 21, 2014

Today is a new day! I woke up refreshed and feeling good. Please dear God let it last. I did need my glasses right away. Anyway I'm on my way to work.

Ok, so things were not to bad today. I did not like the wind blowing. It felt like the wind was cutting through me like a knife. Just part of the game I guess. I am amping myself up to take a shower. The water has to be just right. not to cold and not too hot. Most of the time the shower feels like acid raining down on me.

My Right thigh is tremoring and hurting. I hate muscle spasms. and my right hip is hurting but not to bad.

Wednesday, August 20, 2014

I was going to go to work today until I stepped outside. The rain felt like pellets my friend use to shoot at me when we were young. Its hard to explain the sense of dread when my MS takes over. I crawled into bed thinking I could sleep but the chills had taken hold of me.  The cover moving against my skin was like sandpaper grinding against me. I hope my boss understands tomorrow but you never know. The stress of my boss, the bills, the supplies for school and then my son begging to come home after three days is just more than my body could take. I hope for a better day tomorrow.